Wandering and Autism: Prevention Strategies and Resources

Wandering is a real risk when it comes to children on the autism spectrum.  Sadly,  half of families with elopers report they had never received advice or guidance about elopement from a professional (IAN Research Report: Elopement and Wandering, 2011).

Autism College, in partnership with the National Autism Association, wants to help change that statistic. On Saturday February 18, we are offering a webinar on The Scope of Wandering, Prevention Strategies, and Resources as part of our free  online Autism Safety and Crisis Prevention conference, sponsored in part by The Social Express. It’s your opportunity to get  strategies you can use to decrease your worries.  The webinar will take place on  Saturday, February 18, 8:15 am – 9:45 am PST (11:15 am -12:45 pm EST). The webinar will be interactive.

Register here for the conference, and you will receive information on how to attend this webinar.

How much of a problem is wandering for children with autism? A few statistics:

  • In 2009, 2010, and 2011, accidental drowning accounted for 91% total U.S. deaths reported in children with an ASD ages 14 and younger subsequent to wandering/elopement. (SOURCE: National Autism Association, Lethal Outcomes in ASD Wandering, 2012)
  • More than one third of ASD children who wander/elope are never or rarely able to communicate their name, address, or phone number (IAN Research Report: Elopement and Wandering, 2011)
  • Two in three parents of elopers reported their missing children had a “close call” with a traffic injury (IAN Research Report: Elopement and Wandering, 2011)
  • Children with ASD are eight times more likely to elope between the ages of 7 and 10 than their typically-developing siblings (IAN Research Report: Elopement and Wandering, 2011)

Description of Presentation Topic: The Scope of Wandering, Prevention Strategies, and Resources

Incidents of missing children and wandering-related deaths are being reported in the news with frightening frequency. In the last three years, more than 20 individuals with autism have lost their lives due to wandering. Preliminary data in the first IRB-approved study on autism-related wandering shows that half of children with autism have successfully wandered from adult supervision. Families cite wandering as the most stressful behavior they face. Drowning associated with autism elopement is a leading cause of death among children and adults on the autism spectrum. This presentation will discuss the scope of this issue, prevention strategies and provide resources for caregivers to keep their loved ones safe.

Presenter: Wendy Fournier is a founding board member and President of the National Autism Association.  The organization has been instrumental in bringing federal attention to the issue of autism-related wandering.  In 2010, Wendy and NAA Executive Director Lori McIlwain were invited to present on the wandering/elopement issue before the Interagency Autism Coordinating Committee at NIH, where they outlined the need for data collection, medical diagnostic coding, and federal health agency involvement. As a result, the committee has since implemented several of NAA’s recommendations. In addition to bringing awareness to the issue, NAA has developed extensive resources for the community including the AWAARE collaboration website and the Big Red Safety Box program.

Register here for the conference.

Preventing and Eliminating the Use of Restraints and Seclusion in Schools

Successful reforms have taken place in health care settings, in nursing homes, and in programs treating mental illness, but currently there is no federal law that prohibits in public and private school the use of face down restraints, aversive interventions, restraints that restrict breathing, and locked seclusion.  These practices can result in serious injury, psychological trauma, and even death.

What can we do about this? the first step is to get informed. On Saturday, February 18, 10:00 – 11:30 am PST (1:00 pm – 2:30 pm EST) Pat Amos M.A.,  will be presenting on:  Preventing and Eliminating the Use of Restraints and Seclusion To register for free, go here.

This webinar is part of a series of on-line conference webinars on Autism Safety and Crisis Prevention offerred for free by Autism College in partnership with the National Autism Association (NAA), and sponsored in part by The Social Express.

Description of Presentation Topic:  Preventing and Eliminating the Use of Restraints and Seclusion

The rising tide of Positive Behavior Supports has not lifted all boats, and many students with autism and related disabilities continue to be subjected to the use of restraint, seclusion, and other aversives as part of their education and behavior intervention plans. Successful reforms have taken place in health care settings, in nursing homes, and in programs treating mental illness, but many of our schools have not yet “gotten the word” that these techniques are inherently unsafe and can result in serious injury, psychological trauma, and even death. Evidence clearly shows that restraint and seclusion are not education; they are the failure of education. This webinar will help parents, advocates, and teachers understand how to work together to eliminate these highly dangerous and counterproductive techniques.

Presenter: Pat Amos, M.A., has been an advocate for people with disabilities and their families for over 25 years. She is a founder of Autism Support and Advocacy in Pennsylvania and the Family Alliance to Stop Abuse and Neglect, past president of the Greater Philadelphia Autism Society, a founder and past president of the Autism National Committee, has served as a member of Pennsylvania’s Developmental Disabilities Council, and is a Board member of international TASH.  She currently works as an Inclusion Specialist with the Youth Advocate Program’s Autism Institute.   Her involvement in the movement to prevent restraint and seclusion is longstanding, and she has worked with the national Alliance for the Prevention of Restraint, Aversive Interventions, and Seclusion (APRAIS) since participating in its founding in 2004.

Register here for the conference.

What Can We Do About Depression and Suicidal Ideation in Youths With Autism?

Depression and suicide ideation are are on the list of things we wish we did not have to know more about, but as parents and educators, it is an area that we need to be more informed about – knowledge is empowering!

Autism College in partnership with the National Autism Association (NAA) is presenting a series of free on-line conference webinars on Autism Safety and Crisis Prevention,  sponsored in part by The Social Express.

On Wednesday, February 15, 6:00pm to 7:30pm PST (9:00pm to 10:30pm EST) Dr. Joshua Feder will be addressing this topic. To register for free, go here.

Here is some information as to what this webinar will cover:

Presentation Topic: The Problem of Depression and Suicidal Ideation in Autism and Related Disorders

  • How often do we think it occurs?
  • How serious is it?
  • How do we distinguish serious symptoms from everyday frustration?
  • What are the risk factors? Are they similar to the general population, e.g. depression, loss, and substance use?
  • What should we look for?  Learning to read the cues.
  • When should we be very worried? Does the driven quality of those with ASDs make people more at-risk?
  • What can we do: in everyday life to help prevent depression; when people are sad;
  • How can we use the mental health system?  Are therapies or medications effective? Are there other ways to address depression in ASD?

Dr. Joshua Feder is the Director of the Department of Research in the Graduate School of the Interdisciplinary Council on Developmental and Learning Disorders, and a voluntary assistant professor at UCSD School of Medicine.  Dr. Feder specializes in neurobehavioral medicine and application of DIR/Floortime with families and in schools.  He co-chairs the DIR/Floortime Coalition of California, and co-chairs the South Counties Autism Regional Taskforce (SCART) of the California Senate Select Committee on Autism & Related Disorders. Dr. Feder helped write the American Academy of Child and Adolescent Psychiatry (AACAP) Practice Parameter for Assessment and Treatment of Autism and Related Disorders. He reviews grants for the Organization for Autism Research (OAR) and the National Foundation for Autism Research (NFAR), is a primary clinical investigator for National Institutes of Mental Health (NIMH) and privately funded research in pharmacogenetics with the Child and Adolescent Psychiatric Trials Network (CAPTN).  Dr. Feder serves as medical director for SymPlay developing interactive technology and distance learning systems to support relationship based interventions.  He is involved in advocacy for family choice in evidence-based practice, and he is a frequent commentator and speaker for ValeriesList and for Autism College. Dr. Feder has a full time child and family psychiatric practice in Solana Beach, California.

Register here for the conference.

How can parents reduce the risk of sexual abuse of their children (as adults or children) with autism?

“I have suffered real abuse. Really if it were not for my mom and my therapist pleading for me, I would have retreated into my world. When the bad thing  happened I wanted to  die. Greatly  my mom and therapist  found  a way to help  me grow  from this  experience. I learned  that  there  were really bad people that could do things  to your  body,  but I learned that  you don’t have to let them into your soul.”  – a young man with autism.

Although data on abuse of adults with disabilities is scarce, research on children with disabilities finds that they become victims of abuse at 3.4 times the rate of children who do not have disabilities (Sullivan,T. and Knutson, D., 2001).  While many agree that abuse occurs more, those who specialize in the field of abuse & disability believe that for both children and adults, increased victimization is more likely 10 times the rate than for those without disabilities.

Dr. Nora BaladerianAccording to Nora Baladerian, Ph.D., a licensed psychologist practicing both clinical and forensic psychology, children with disabilities have many of the same needs as any other child, for education, family, safety, recreation, among many others.  Most parents of children with disabilities receive information and guidance on these aspects of life, but nearly none on the problems of child abuse, sexual assault, molestation, or other types of maltreatment that they may experience.  Knowledge is power, and when parents and other family members are aware that their child (or adult family member) who has a significant disability is more likely to be targeted for abuse than other children, they are more likely to implement the risk reduction strategies available to them.

This is one of the reasons Autism College has partnered with the National Autism Association to put on a free online conference, Autism Safety and Crisis Prevention. This series of  webinars is sponsored in part by The Social Express.  Dr. Nora Baladerian will present on: How can parents reduce the risk of sexual abuse of their children (as adults or children)?,  on Saturday, February 11, 8:15am PST – 9:45am PST (11:15am EST – 12:45pm EST)

The webinar will be interactive. There will be an opportunity for those signed up to send in questions ahead of time or while listening to the program. Chantal Sicile-Kira will moderate the Q & A.  To register for free, go here. For more information about the other webinars included in this conference, go here. Instructions will be sent to those signed up. (For those who wish to purchase transcripts, they will be made available after the conference.)

Dr. Baladerian’s presentation  How can parents reduce the risk of sexual abuse of their children (as adults or children)? will focus on the basics all parents should know about sexual abuse among individuals on the Autism Spectrum. Topics to be included include:

  • You know your child. How can you prepare your child for this particular danger?
  • How can you prepare yourself to be not only their educator, but to be a part of an overall strategy to reduce the risk of becoming a victim?
  • This presentation will discuss the basics of being a knowledgeable parent in the area of sexual abuse, including knowing the signs of possible abuse, designing a plan, and developing a protocol to use for all new persons who you will approve or hire to work with your family.

Nora Baladerian, Ph.D., is a licensed psychologist in Los Angeles, California, practicing both clinical and forensic psychology . Since 1971, long before the crime victimization field as a whole focused attention on the needs of persons with disabilities, she has specialized in working with individuals with developmental disabilities. With an expertise in serving crime victims with disabilities and people charged with victimless sex crimes, she has successfully rallied victim/witness organization leaders, crime victims rights advocates, social service professionals, forensic psychologists, law enforcement, attorneys, members of the judiciary, and others to take up the cause of ensuring that the needs of society’s most vulnerable are not overlooked or otherwise forgotten. In 1986, as a proactive way both to bring together the growing number of those dedicated to this work and promoting greater cross-disciplinary dialog, she began convening national conferences on abuse of individuals with disabilities, hosting the 19th in 2005 with The Arc of Riverside County, and the First Online Professional Conference of its kind that same year. In 2008, the Attorney General of the United States presented her with the National Crime Victims Service Award in recognition of her pioneering efforts on behalf of persons with disabilities and in advancement of the mission of the Office for Victims of Crime of the U.S. Department of Justice.

Many thanks to our sponsor, The Social Express,

The Social ExpressSocial Learning Made Easy

What can you do about your ASD child and Bullying? Sexual Abuse? Suicide Ideation? Wandering? Restraints & Seclusion?

As parents and educators of children and teens on the spectrum we have real worries in regards to the safety of our loved ones and students. Here is your opportunity to get some facts and strategies to decrease your worries.

Autism College in partnership with the National Autism Association (NAA) is presenting a series of free on-line conference webinars on Autism Safety and Crisis Prevention.  Topics to be addressed are sexual abuse risk reduction, bullying prevention, suicide risk, wandering, and preventing the use of restraints and seclusion. Don’t miss the opportunity to learn how to help support  the emotional and physical health and safety of your loved one affected by autism.

This series of interactive webinars  to be held in February will include presentations by  experts in the field of autism.  For those unable to attend all the webinars, there will be audio files and transcripts available for purchase after the conference. Register here for the conference.

Topics, presenters and schedule  as follows:

 Moderator: Chantal Sicile-Kira, author and founder of AutismCollege.com. The webinars will be interactive.  Attendees will have the opportunity to type in questions pertaining to the topic before and during each webinar. Chantal will introduce each presenter and moderate the Q&A opportunity at the end of each presentation.

 

Presentation Topic: How can parents reduce the risk of sexual abuse of their children (as adults or children)?

Saturday, February 11, 8:15 PST – 9:45 am PST

This presentation will focus on the basics all parents should know about sexual abuse among individuals on the Autism Spectrum. You know your child. How can you prepare your child for this particular danger? How can you prepare yourself to be not only their educator, but to be a part of an overall strategy to reduce the risk of becoming a victim? This presentation will discuss the basics of being a knowledgeable parent in the area of sexual abuse, including knowing the signs of possible abuse, designing a plan, and developing a protocol to use for all new persons who you will approve or hire to work with your family.

Presenter: Nora Baladerian, Ph.D., is a licensed psychologist in Los Angeles, California, practicing both clinical and forensic psychology . Since 1971, long before the crime victimization field as a whole focused attention on the needs of persons with disabilities, she has specialized in working with individuals with developmental disabilities. With an expertise in serving crime victims with disabilities and people charged with victimless sex crimes, she has successfully rallied victim/witness organization leaders, crime victims rights advocates, social service professionals, forensic psychologists, law enforcement, attorneys, members of the judiciary, and others to take up the cause of ensuring that the needs of society’s most vulnerable are not overlooked or otherwise forgotten. In 1986, as a proactive way both to bring together the growing number of those dedicated to this work and promoting greater cross-disciplinary dialog, she began convening national conferences on abuse of individuals with disabilities, hosting the 19th in 2005 with The Arc of Riverside County, and the First Online Professional Conference of its kind that same year. In 2008, the Attorney General of the United States presented her with the National Crime Victims Service Award in recognition of her pioneering efforts on behalf of persons with disabilities and in advancement of the mission of the Office for Victims of Crime of the U.S. Department of Justice.

Presentation Topic: The 3 R’s To Bullying Prevention for Students with Autism Spectrum Disorders: Recognize, Respond, and Report

Saturday, February 11, 10:00 – 11:30am PST

Bullying in the United States was once a silent epidemic which was endured by millions of children on a daily basis. The attitude “kids will be kids” was just part of normal childhood development. Today, bullying in schools is being recognized as a national problem for all students including children with autism spectrum disorders (ASD). A report from the Massachusetts Advocates for Children (Ability Path, 2011) found that nearly 88% of individuals with ASD are bullied in school. Dr. Ernsperger will provide research and specific strategies in order for parents and professionals to create a safe educational environment and follow the legal requirements set out by the federal government on bullying prevention for students with disabilities.

Learning Objectives:

  • Recognize the statistics of bullying
  • Recognize the warning signs of victims and stereotypes of bullies
  • Respond to the victims of bullies
  • Respond to bullies effectively
  • Teach anti-bullying social skills
  • Report bullying incidence in school settings

Presenter: Dr. Lori Ernsperger is from Henderson, NV where she is the owner of Autism and Behavioral Consulting. Dr. Lori received her doctorate in Special Education from Indiana University. She has over 25 years of experience working in the public schools as a classroom teacher, administrator, and behavioral consultant. She is also an adjunct professor at St. Petersburg College in Florida. Dr. Ernsperger currently provides staff development and conference workshops to school district personnel and parents.

Her workshops cover the following topics: Managing Problem Behaviors, Implementing Effective Instructional Methods, Designing Appropriate and Functional Data Collection Methods for the Classroom, Practical Strategies for Working with Individuals with Asperger Syndrome, and How to Get Your Kids to Eat. Dr. Ernsperger is the author of: Keys to Success for Teaching Students with Autism and Just Take a Bite: Easy Effective Answers to Food Aversions and Eating Challenges and Girls Under the Umbrella of Autism Spectrum Disorders.

 Presentation Topic: The Problem of Depression and Suicidal Ideation in Autism and Related Disorders

Wednesday, February 15,  6:00-7:30  pm PST

  • How often do we think it occurs?
  • How serious is it?
  • How do we distinguish serious symptoms from everyday frustration?
  • What are the risk factors? Are they similar to the general population, e.g. depression, loss, and substance use?
  • What should we look for?  Learning to read the cues.
  • When should we be very worried? Does the driven quality of those with ASDs make people more at-risk?
  • What can we do: in everyday life to help prevent depression; when people are sad;
  • How can we use the mental health system?  Are therapies or medications effective? Are there other ways to address depression in ASD?

Presenter: Dr. Joshua Feder is the Director of the Department of Research in the Graduate School of the Interdisciplinary Council on Developmental and Learning Disorders, and a voluntary assistant professor at UCSD School of Medicine.  Dr. Feder specializes in neurobehavioral medicine and application of DIR/Floortime with families and in schools.  He co-chairs the DIR/Floortime Coalition of California, and co-chairs the South Counties Autism Regional Taskforce (SCART) of the California Senate Select Committee on Autism & Related Disorders. Dr. Feder helped write the American Academy of Child and Adolescent Psychiatry (AACAP) Practice Parameter for Assessment and Treatment of Autism and Related Disorders. He reviews grants for the Organization for Autism Research (OAR) and the National Foundation for Autism Research (NFAR), is a primary clinical investigator for National Institutes of Mental Health (NIMH) and privately funded research in pharmacogenetics with the Child and Adolescent Psychiatric Trials Network (CAPTN).  Dr. Feder serves as medical director for SymPlay developing interactive technology and distance learning systems to support relationship based interventions.  He is involved in advocacy for family choice in evidence-based practice, and he is a frequent commentator and speaker for ValeriesList and for Autism College. Dr. Feder has a full time child and family psychiatric practice in Solana Beach, California.

Presentation Topic:  The Scope of Wandering, Prevention Strategies, and Resources

Saturday, February 18, 8:15 – 9:45 am PST

Incidents of missing children and wandering-related deaths are being reported in the news with frightening frequency. In the last three years, more than 20 individuals with autism have lost their lives due to wandering.  Preliminary data in the first IRB-approved study on autism-related wandering shows that half of children with autism have successfully wandered from adult supervision.  Families cite wandering as the most stressful behavior they face.  Drowning associated with autism elopement is a leading cause of death among children and adults on the autism spectrum. This presentation will discuss the scope of this issue, prevention strategies and provide resources for caregivers to keep their loved ones safe.

Presenter: Wendy Fournier is a founding board member and President of the National Autism Association.  The organization has been instrumental in bringing federal attention to the issue of autism-related wandering.  In 2010, Wendy and NAA Executive Director Lori McIlwain were invited to present on the wandering/elopement issue before the Interagency Autism Coordinating Committee at NIH, where they outlined the need for data collection, medical diagnostic coding, and federal health agency involvement. As a result, the committee has since implemented several of NAA’s recommendations. In addition to bringing awareness to the issue, NAA has developed extensive resources for the community including the AWAARE collaboration website and the Big Red Safety Box program.

Presentation Topic:  Preventing and Eliminating the Use of Restraint and Seclusion

Saturday, February 18, 10:00 – 11:30 am PST

The rising tide of Positive Behavior Supports has not lifted all boats, and many students with autism and related disabilities continue to be subjected to the use of restraint, seclusion, and other aversives as part of their education and behavior intervention plans. Successful reforms have taken place in health care settings, in nursing homes, and in programs treating mental illness, but many of our schools have not yet “gotten the word” that these techniques are inherently unsafe and can result in serious injury, psychological trauma, and even death. Evidence clearly shows that restraint and seclusion are not education; they are the failure of education. This webinar will help parents, advocates, and teachers understand how to work together to eliminate these highly dangerous and counterproductive techniques.

Presenter: Pat Amos, M.A., has been an advocate for people with disabilities and their families for over 25 years. She is a founder of Autism Support and Advocacy in Pennsylvania and the Family Alliance to Stop Abuse and Neglect, past president of the Greater Philadelphia Autism Society, a founder and past president of the Autism National Committee, has served as a member of Pennsylvania’s Developmental Disabilities Council, and is a Board member of international TASH.  She currently works as an Inclusion Specialist with the Youth Advocate Program’s Autism Institute.   Her involvement in the movement to prevent restraint and seclusion is longstanding, and she has worked with the national Alliance for the Prevention of Restraint, Aversive Interventions, and Seclusion (APRAIS) since participating in its founding in 2004.

Register here for the conference.

Free -on-line Conference on Autism Safety and Crisis Prevention

[Updated! Registration is now live]

Autism College in partnership  with the National Autism Association (NAA) is presenting a free on-line conference on Autism Safety and Crisis Prevention.  Topics to be addressed are sexual abuse risk reduction, bullying prevention, suicide risk, wandering, and preventing the use of restraints and seclusion.

The on-line conference Autism Safety and Crisis Prevention  to be held in February,  will include presentations by  experts in the field of autism and  safety issues, and broaches sensitive topics with real life strategies.  There will be a question and answer session moderated by Chantal Sicile-Kira following each presentation.  Don’t miss the opportunity to learn how to help support  the emotional and physical health and safety of your loved one affected by autism. Schedule is as follows:

Saturday, February 11, 8:15am- 9:45am PST,  Dr. Nora Baladerian, Ph.D. will present “How  Can Parents Reduce the Risk of Sexual Abuse of Their Child or Young Adult?”.

Saturday, February 11, 10:00am-11:30am PST, Dr. Lori Ernsperger will discuss “The 3 R’s to Bullying Prevention for Students with Autism Spectrum Disorders: Recognize, Respond, and Report”.

Wednesday, February 15, 6:00pm-7:30pm PST, Dr. Joshua Feder will discuss “The Problem of Depression and Suicidal Ideation in Autism and Related Disorders”.

Saturday, February 18, 8:15am-9:45am PST,  Wendy Fournier of the NAA will  discuss Wandering .

Saturday, February 18, 10:00am- 11:30,am PST, Pat Amos, M.A. will discuss Preventing and Eliminating the Use of Restraints and Seclusion.

For those unable to attend live, there will be transcripts available for purchase. Register here.

NY National Autism Association Presentations

This summer Jeremy and I went to New York and presented to the local chapters of the National Autism Association in July 2010. Many wanted copies of the presentations we gave. The presentations are embedded below, after the break.  You may download each by clicking on the download option in the viewer. Please do not reprint without permission. Continue reading »