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}{"id":2219,"date":"2006-04-02T19:38:58","date_gmt":"2006-04-03T03:38:58","guid":{"rendered":"http:\/\/www.chantalsicile-kira.com\/?p=264"},"modified":"2006-04-02T19:38:58","modified_gmt":"2006-04-03T03:38:58","slug":"adapting-to-autism","status":"publish","type":"post","link":"https:\/\/www.autismcollege.com\/blog\/2006\/04\/02\/adapting-to-autism\/","title":{"rendered":"Adapting to Autism"},"content":{"rendered":"<h2>Carmel Valley woman&#8217;s experiences and books help other families deal<br \/>\nwith the disorder<\/h2>\n<h3>San Diego Union Tribune &#8211; April 2, 2006<\/h3>\n<p>By Ozzie Roberts<br \/>\nWhen talking about her 17-year-old son, Jeremy, who copes with severe autism, Chantal<br \/>\nSicile-Kira, the author of two books on the developmental disorder, often says: \u201cThings<br \/>\nhappen for a reason. We all serve a purpose in some way.\u201d<br \/>\nHer husband, Daniel, a quiet, soft-spoken<br \/>\nguy, will give you a bit of a different take.<br \/>\n\u201cWhy was my son born with autism? Why<br \/>\ndid this happen to our family? I don&#8217;t know,\u201d<br \/>\nhe&#8217;ll say. \u201cIt&#8217;s just random selection. But<br \/>\n(we&#8217;ve) got to play with the cards (we&#8217;re)<br \/>\ndealt. That&#8217;s life.\u201d<\/p>\n<p>Clearly, Chantal, 49, and Daniel, 53, have<br \/>\ngone &#8217;round and &#8217;round about their son&#8217;s<br \/>\ncondition.<\/p>\n<p>The Carmel Valley couple have been<br \/>\nmarried for more than 27 years and lived<br \/>\ntogether all over the United States, France<br \/>\nand Great Britain. And together, they&#8217;ve searched the two continents in often daunting<br \/>\nefforts to find effective help for their son through the years.<br \/>\nThe Sicile-Kiras get past their differences and stay united on one major consideration:<br \/>\nThey both want the best for Jeremy and his little sister, Rebecca, 13.<br \/>\nSo while Daniel supports the family as an architect, Chantal, who worked awhile in<br \/>\nrecreation therapy for kids with disabilities at a state hospital, stays at home to be a buoy<br \/>\nfor her own young.<\/p>\n<p>In the course, she&#8217;s joined the executive board of the San Diego Chapter of the Autism<br \/>\nSociety of America; she&#8217;s a national speaker for the cause; and she hosts a weekly 30-<br \/>\nminute Internet radio program on Autism One Radio (www.autismone.com) at 10:30<br \/>\na.m. Tuesdays. Every second Tuesday of the month, she hosts a program in French at 11<br \/>\na.m.<\/p>\n<p>Chantal also works as a volunteer for the Autism Society, helping coordinate such events<br \/>\nas the organization&#8217;s sixth annual gala fundraiser \u2013 \u201cAll Out for Autism\u201d \u2013 set for 6 p.m.<br \/>\nApril 15 at Sea World.<\/p>\n<p>Chantal wrote \u201cAutism Spectrum Disorders\u201d and \u201cAdolescents on the Autism Spectrum.\u201d<br \/>\nThey&#8217;re two books intended to help families of autistic children guide them into living as<br \/>\nindependently as possible and making their own informed decisions.<br \/>\nThe books teach people about autism and about where to go to get assistance for children<br \/>\n\u2013 keys, she says, to coping with the disorder.<\/p>\n<p>\u201cAdolescents,\u201d published by Perigee, a division of Penguin Group, was released last<br \/>\nmonth. Chantal celebrated with a book signing that was part of a fundraiser for the<br \/>\nAutism Society. It was held at the Poseidon Restaurant in Del Mar.<br \/>\n\u201cAutism Spectrum,\u201d also published in the U.S. by Perigee, and in the United Kingdom by<br \/>\nRandom House, in 2004, won the Autism Society&#8217;s Outstanding Literary Work of the<br \/>\nYear Award in 2005.<\/p>\n<p>She tells you that she put together the two books primarily on the strength of the<br \/>\neducation she and her family gained through their experiences with Jeremy. \u201cI figured if I<br \/>\nhad all this information amassed,\u201d she says, \u201cwhy not share it? (Most) people don&#8217;t know<br \/>\nhow to (relate to) autistic kids.\u201d<\/p>\n<p>And if the books help others, she adds, it reassures her that her family&#8217;s trials are actually<br \/>\nparts of the greater plan.<\/p>\n<p>Jeremy is breathing testament to the positives, Chantal vows.<br \/>\nA junior at Torrey Pines High, he speaks very little and has even less regard for<br \/>\nboundaries. He&#8217;ll walk right into your personal space \u2013 much the way he did last month<br \/>\nwhen I visited his family&#8217;s home for the first time.<\/p>\n<p>Gangly, with deep-set eyes, Jeremy came nose to nose with me, snatched my hat from my<br \/>\nhead and stood, twirling it around, smiling all the while. He likes twirling things.<br \/>\nHe&#8217;s a major pain with that, says his sister, Rebecca, only because she&#8217;s had to put up<br \/>\nwith him twirling things out of her room for so many years.<br \/>\nAll of that behavior is characteristic of his disorder.<\/p>\n<p>But uncharacteristically, he reads and comprehends at a high school level. He types,<br \/>\nappreciates artistic things and displays a keen sense of the way of things.<br \/>\n\u201cI remain diligent about getting what he needs,\u201d Chantal says, \u201cand I never let him give<br \/>\nup on himself. And he learns.\u201d<\/p>\n<p>With help last February, Jeremy, who goes to school every day with an aide, wrote a 21-<br \/>\nline autobiographical poem for a sociology class that he calls his \u201cI Am Poem.\u201d It&#8217;s<br \/>\ninsightful and concludes: \u201cPay more attention to me and less to the label of autism. I am<br \/>\nunique.\u201d<\/p>\n<p>He also likes to have fun, family members agree.<br \/>\n\u201cI love when he and I play games together,\u201d Rebecca says. \u201cI love my brother. He&#8217;s really<br \/>\nvery nice.\u201d<\/p>\n<p>Says Daniel, his dad: \u201cI guess I&#8217;m still making peace with his condition. But I feel a lot<br \/>\nbetter about where he&#8217;s at in his development and in the systems available for him. He&#8217;s a<br \/>\nkid, and it&#8217;s just been positive seeing him develop over the years.\u201d<br \/>\nChantal says she sees her son someday living away from home in a supported-living<br \/>\nsituation.<\/p>\n<p>\u201cAnd I&#8217;m OK with that,\u201d she says. \u201cIt would signal that he&#8217;s ready for as independent and<br \/>\nself-determined life as possible \u2013 that&#8217;s my goal for him, for all kids\u201d with autism.<\/p>\n<p>SignOnSanDiego.com News Metro &#8212; Adapting to autism<\/p>\n","protected":false},"excerpt":{"rendered":"<p>She tells you that she put together the two books primarily on the strength of the<br \/>\neducation she and her family gained through their experiences with Jeremy. \u201cI figured if I<br \/>\nhad all this information amassed,\u201d she says, \u201cwhy not share it? (Most) people don&#8217;t know<br \/>\nhow to (relate to) autistic kids.\u201d<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[430,517,1],"tags":[835,55,11,457,467,36],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v21.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Adapting to Autism - Autism College<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.autismcollege.com\/blog\/2006\/04\/02\/adapting-to-autism\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Adapting to Autism - Autism College\" \/>\n<meta property=\"og:description\" content=\"She tells you that she put together the two books primarily on the strength of the education she and her family gained through their experiences with Jeremy. \u201cI figured if I had all this information amassed,\u201d she says, \u201cwhy not share it? 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